It's a mysterious process when the brain heals from the memory of pain; I was practically skeletal, I had gone down to a UK size 6 and my bones stuck out everywhere. It was impossible to sleep or stay awake; even having a blanket cover me was painful. If Merlin brushed against me I would scream inwardly - we had to work hard
Showing posts with label RA. Show all posts
Showing posts with label RA. Show all posts
Wednesday, 30 June 2010
'Treat the souls of others with care, you cannot see the pain they carry.'
This is what I did today...I had my magic potion infusion for my rheumatoid arthritis at hospital - Actemra is on drug trials, and which hopefully will get NICE (National Institute of Clinical Excellence) clearance for general use soon. The drug is administered by infusion into my arm and the procedure takes between 2-4 hours depending on how many blood tests and monitoring schedules are required; it's a small price to pay comparitive to how I was before I started Actemra.
It's a mysterious process when the brain heals from the memory of pain; I was practically skeletal, I had gone down to a UK size 6 and my bones stuck out everywhere. It was impossible to sleep or stay awake; even having a blanket cover me was painful. If Merlin brushed against me I would scream inwardly - we had to work hard
It's a mysterious process when the brain heals from the memory of pain; I was practically skeletal, I had gone down to a UK size 6 and my bones stuck out everywhere. It was impossible to sleep or stay awake; even having a blanket cover me was painful. If Merlin brushed against me I would scream inwardly - we had to work hard
Friday, 26 February 2010
So am I controlling my arthritis, or is it controlling me?
Lately I've been been feeling my Rheumatoid Arthritis a bit - I started Pilates a few months ago, mostly as a result of the infamous sideways saddle incident which made me realise I was doing too much to protect my weak left side, I could see how disabled I was becoming because of it - when it gets to the stage when you can't get on or off your horse without using a crane, its time to look for help, which I have found via Emma my Pilates teacher who is doing a fab job with some frankly crappy materials, to be specific, my bones.
Other than the pilates with Emma, I've had a busy few weeks - I attended several trade fairs - such fun! There is so much stuff you could spend your hard earned pounds on in an attempt to generate more pennies; so much stuff you never knew you needed before you saw it!! It's fun buying, chatting to people, going back to the cafe for another cake and capuccino because you know you're going to be able to put it down on the business and the taxman will just have to lump it....I could spend and spend at these trade fairs, and it all seems like it could be the next best thing.
The last thing you want to do is wake up in the morning with your credit card receipt and think 'oh no, I didn't really, did I?'
The last thing you want to do is wake up in the morning with your credit card receipt and think 'oh no, I didn't really, did I?'
Labels:
Creativity,
Necklace,
Pain,
Pilates,
RA,
Rheumatoid Arthritis
Tuesday, 24 November 2009
Beating My Car With A Branch of a Tree.....
The scene from 'Fawlty Towers' of John Cleese beating his car with a stick because it broke down seems perfectly reasonable to me.
Its official, my car is knackered. I have to confess its probably not had an easy life, being used as our 'workhorse' car, it is continually loaded up with saddles, bridles, sacks of horse feed and bales of horse bedding; we moved house using it, and its probably moved tons and tons of stuff over its lifetime. I do though keep the front seat free for my handbag, spare coats, my packets of tissues, bags of sweets, phone chargers, bottles of water
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